Roberta Anido de Pena has been the Founder and President of the Association for Assistance to Patients with Primary Immunodeficiency (A.A.P.I.D.P.) since 2005, and the Founder and President of the Argentine Federation of Rare Diseases (FADEPOF) since 2020. She is actively involved in international organisations, such as the International Patient Organisation for Primary Immunodeficiencies (IPOPI) and the Ibero-American Alliance for Rare Diseases (ALIBER). In 2019, she joined the Rare Disease International (RDI) Policy Committee and became the Representative of the WHO Global Collaborative Network for Rare Diseases (WHO CGN 4RD). She received an Honorary Diploma from the Honourable Senate of the Nation in 2014 for her advocacy work in the defense of human rights.