Organising Committee (OC)

Martine Pergent

Martine Pergent is currently the President of IPOPI and was elected in October 2018 after serving eight years as IPOPI Vice-President. She has wide experience in patient advocacy and is particularly committed to raising awareness on PIDs as rare conditions, improving access to early and accurate diagnosis and personalised treatment, encouraging, and supporting the creation of new patient organisations, especially committed to low- and middle-income countries. She has special interest in the benefit rare diseases can obtain with the progress of medical and social sciences, technology, and digitalisation.

As a patient advocate, Martine Pergent actively works so that patients are not only heard but listened to when it comes to decisions that could or will impact their lives. Therefore, she sees patients’ representatives as stakeholders whose experience and knowledge can enrich other stakeholders’ perspectives, in joined efforts to cooperating so to achieve the ultimate common goal: the best possible life for patients with rare diseases.