Organising Committee (OC)

Johan Prevot

Johan Prevot has worked in the healthcare sector for 20 years in the field of patient advocacy and health policy. He is the Executive Director of the International Patient Organisation for Primary Immunodeficiencies (IPOPI). As such he is responsible for the management and growth of IPOPI’s global activities, awareness, and advocacy campaigns as well as the strengthening of IPOPI’s national member organisations network.

Johan Prevot has throughout his career been an advocate for improving patient access to early diagnosis and treatment in the field of rare diseases including primary immunodeficiencies, haemophilia and alpha 1 antitrypsin deficiency among others. Access to diagnosis and treatment for primary immunodeficiencies and other rare plasma related disorders varies greatly from country to country and many people living with these conditions in developing countries still nowadays cannot access their life enhancing and/or lifesaving therapies. Johan has and continues to work closely with other stakeholder organisations sharing common objectives and priorities.